For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
Site Search
When we set out to create the Foundation's new website, there was a lot we wanted to accomplish. Our goal was a modern, visually compelling CFF.org that provides more helpful information for the millions of people who visit each year. But we wanted to do something much more, too.
As the mother of a child with CF and volunteer for the CF Foundation, I know first-hand the extraordinary things that Dr. Bob Beall has done for our community, and I am grateful for the legacy of hope that he leaves behind.
Creative use of technology can help build a more connected community. Read on to learn about the Cystic Fibrosis Foundation's innovative efforts to include more people with cystic fibrosis.
I can say without hesitation that the cystic fibrosis online community is unlike any I've ever seen. In my new role, I am excited to see the very engaged CF community in action. I can't wait to communicate with everyone, especially those in the online community, and see where you'll take us next.
An inside look at the inspiration and purpose behind our new CF Community Blog.
Our top blog posts of 2015 focus on big decisions, difficult struggles and small battles against CF.
President and CEO Michael Boyle shares a message to CF Foundation staff on racism and discrimination.
As I assume my new role as president and CEO of the CF Foundation, I am humbled by all that this organization has achieved and am determined to continue our work toward the ultimate goal. Here are my thoughts as I take over the reins from my dear friend and colleague.
President and CEO Michael Boyle shares an update on the Foundation's pledge to listen, learn, and take action against racism and discrimination.