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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Dustin Raynor holding a wrestling belt and posing in front of an American flag

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Becoming a Professional Wrestler With CF

My whole life I pushed myself physically and mentally to achieve my dream in professional wrestling. It turns out I wasn’t dealing with CF. CF was dealing with me.

A selfie of Dustin Raynor in the car
June 27, 2023 | 6 min read
Elizabeth Raglow and a friend smiling at a Breathe Hope table on their college campus.

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Realizing the Impact of My Volunteering

I began volunteering as a way to support my cousin with CF. But over time, I discovered the community and impact that can come from even the smallest efforts.

A professional headshot of Elizabeth Raglow
June 23, 2023 | 6 min read
Lin Marando taking a selfie in a hospital mirror with a friend

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I’m 24 and I have CF — and Bone Disease

I have faced numerous health challenges in my life, including a recent diagnosis of osteopenia. Despite this, I am resilient, grateful, and determined to take care of myself while finding strength in the cystic fibrosis community.

A selfie of Lin Marando showing off her tattoos and forked tongue
June 21, 2023 | 5 min read
Nicole Kohr smiling and holding a stage light above her head like a spotlight

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Discovering the Power of Advocacy

Advocacy is impactful at all ages, but the term can sound intimidating. It implies effort, time, commitment, politics, and publicity. As a 30-year-old with cystic fibrosis, I am currently an active member of the CF community, but I was not always aware of the benefits, power, and impact of advocacy.

Nicole-Kohr-Headshot
June 15, 2023 | 6 min read
Frederick Merz kneeling with a sword during iaido practice

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Martial Arts Helped Me Stay Healthy With CF

Growing up, I always tried to stay active, but it wasn’t until I was hospitalized that I decided martial arts would be the outlet to keep me healthy and boost my confidence.

Frederick Merz taking a selfie in front of the Okayama Castle
June 13, 2023 | 6 min read
Justin Goldsmith and his wife smiling

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The Challenges of Becoming a Dad With CF

My wife and I knew that following our dream of having children would be difficult, but we would do whatever it takes to grow our family. Despite the challenges we’ve experienced on our in-vitro fertilization (IVF) journey, we will continue to fight to make our dream a reality.

A professional headshot of Justin Goldsmith
June 8, 2023 | 7 min read