For the first time, the Cystic Fibrosis Foundation invited non-CF experts to its annual research conference to meet with CF researchers. The conference -- New Technologies Advancing Toward a One-Time Cure -- in Savannah last month focused on the challenges being faced in gene editing, gene delivery and stem-cell biology and laid the foundation for new collaborations.
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Over the past 20 years, I've learned a lot when it comes to raising funds to support my daughter, who has cystic fibrosis. Here are some tips for connecting with sponsors to ensure fundraising success.
After my son, Zach, was diagnosed with this cystic fibrosis, my wife and I began to understand the many challenges associated with it. We quickly realized we wanted to support the Cystic Fibrosis Foundation so we could help our son in every way possible. Here are some fundraising ideas that were simple, yet effective, for us in securing donations.
I kept at riding because every time my lungs would get tight, I thought of people with CF who would give anything to be out of breath just because they were riding up a hill.
Drs. Drucy Borowitz and Manu Jain share new developments in drugs that will treat the underlying cause of cystic fibrosis.
I'm so excited for the 2017 Volunteer Leadership Conference in Dallas, Texas! We can't wait to share the conference with everyone both in Dallas and via the live stream.
It wasn't until my son was born with cystic fibrosis that I became motivated to raise money for a cause. In the past three years, I have learned quickly how to manage my time and maximize donations.
I thought I would never get married -- I didn't want to burden anyone else with my CF. But, after meeting Ramon, we knew we wanted to get married and the only gift we wanted was time.
I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
Ever wonder, “Does my donation make a difference?” For people with cystic fibrosis like Jake Bachman, your generosity will give him a chance for the future. This Giving Tuesday, give to an organization that's determined to find a cure for all people with cystic fibrosis.