BreatheCon is a unique event to virtually gather with other adults with cystic fibrosis in a welcoming, inclusive space where you can be your authentic self.
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Your doctor may classify your baby as having CRMS/CFSPID if he or she has a positive newborn screen and subsequent sweat chloride test results that fall into an uncertain or borderline range described as "intermediate."
The Mutation Analysis Program provides free genetic testing to people with cystic fibrosis to help identify their CF gene variants.
Because of the wide variety of mental health concerns and needs of the CF population, the Cystic Fibrosis Foundation has formed the Prioritizing Research in Mental Health (PRIME) Working Group, which is dedicated to mental health research.
The Clinical Pilot and Feasibility Award is intended to support a project involving human subjects or samples that will develop and test new hypotheses and/or new methods in research areas relevant to cystic fibrosis.
The Cystic Fibrosis Foundation, alongside the CF community, urges Congress to pass the PASTEUR Act and the HELP Copays Act.
The Cystic Fibrosis Foundation offers competitive awards to support clinical research projects directly related to cystic fibrosis treatment and care.
Por medio de los ensayos clínicos, se han obtenido logros increíbles en el tratamiento de la fibrosis quística (FQ). Gracias a estas investigaciones y a los voluntarios que se han ofrecido como participantes en los estudios, actualmente hay medicinas y tratamientos que han agregado mañanas, y que hacen que la vida con FQ sea mejor para miles de personas. Estos voluntarios y quienes los apoyan en los ensayos clínicos son pioneros que abren caminos hacia los tratamientos nuevos.
The Cystic Fibrosis Foundation is a people-centered organization that offers a unifying mission that guides our work, generous benefits, and rewarding career opportunities across multiple disciplines.
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