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Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
Working alongside the CF community, the Foundation has fostered the development of more than a dozen CF treatments — an unprecedented number in a short span of time — and helped add decades of life for people with CF. And while therapies such as Trikafta® have had an incredible impact on the lives of those with CF, there are still many people with this disease who do not benefit from existing treatments. Our goal is to cure cystic fibrosis.
The Grampions program provides connection, support, and volunteer opportunities for adults 50+ who want to make a difference for those living with CF and their families while finding community with others.
Cystic fibrosis is caused by mutations in the gene responsible for producing the cystic fibrosis transmembrane conductance regulator (CFTR) protein. For this reason, scientists are exploring ways to provide a correct copy of the gene to treat CF.
People living with cystic fibrosis and their families face complicated issues related to getting the care they need. CF Foundation Compass makes sure that no one has to do it alone.
Revised approach to lung function reporting is shown to be more scientifically accurate and may reduce health disparities.
The Virginia Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more!
Learn more about KC White, chair of the CF Foundation’s Board of Trustees.