I have always been very interested in science, eventually leading to my career as a genomic scientist. My curiosity helped me cope with the uncertainties of cystic fibrosis, leading me to many academic, professional, and personal opportunities that gave me a more expansive view of how my different roles and identities can build upon one another.
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To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.
At this age, your child with cystic fibrosis is ready to transition from breast milk or formula to whole milk or a high-calorie supplement. Encourage independent eating. Create a consistent schedule and mealtime expectations.
Hearing from diverse voices is critical as we continue our journey to listen, learn, and take action against racism and discrimination.
Our corporate champions are an important part of our progress — with corporate supporters by our side, we continue to advance our goal — to make CF stand for Cure Found.
With help and support from my parents, I felt empowered to make my first big decision with my cystic fibrosis care: When to remove my G-tube.
Whether focused on physical wellness or connectivity and creativity, there are countless projects led by the community to support and empower people with CF and their loved ones.
The Grampions program provides connection, support, and volunteer opportunities for adults 50+ who want to make a difference for those living with CF and their families while finding community with others.
No matter where you are in life — whether you’re a person with CF, parent, or caregiver — CF Peer Connect can connect you to a peer who has been through a similar situation.