Through efficient study design, optimized clinical trial execution, and high-quality data, the Therapeutics Development Network (TDN) helps speed the delivery of new and better therapies to people with cystic fibrosis.
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More states are establishing prescription drug affordability boards to assess and address the cost and affordability of prescription drugs. Learn more about what these reviews mean for you and your loved ones.
Pseudomonas aeruginosa are strains of bacteria that are widely found in the environment. Pseudomonas is a major cause of lung infections in people with cystic fibrosis. The bacteria thrive in moist environments and equipment, such as humidifiers and catheters in hospital wards, and in kitchens, bathrooms, pools, hot tubs and sinks.
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Some genetic diseases, such as cystic fibrosis, are caused by mutations in a single gene. A gene contains DNA “letters” that spell out the instructions to make a specific protein. When the protein isn't made correctly, it can lead to a cascade of problems.
Whether focused on physical wellness or connectivity and creativity, there are countless projects led by the community to support and empower people with CF and their loved ones.
As people with cystic fibrosis live longer, there is a growing demand for physicians who are trained to address the unique medical needs of adults with CF and a need for greater participation from adult care programs in the clinical research enterprise.
Have questions about clinical trials? The Clinical Trial Navigator is a person who can help you get the answers you need.
Every May, the cystic fibrosis community comes together for CF Awareness Month. The theme of this year’s CF Awareness Month is, “Resilient.” The Cystic Fibrosis Foundation has shareable resources to help you tell your story on social media this month and any time of year — no matter what your connection to CF is.
Find answers to questions about the COVID-19 pandemic while living with cystic fibrosis.