The Cystic Fibrosis Foundation is requesting applications with a Letter of Intent for innovative, multi-site quality improvement projects that aim to test tools and processes facilitating remote cystic fibrosis care delivery.
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Palliative care guidelines provide recommendations to help reduce physical and emotional symptoms and improve quality of life for people with cystic fibrosis throughout their lives.
The patient-centered outcomes research (PCOR) training manual provides discrete steps, tools, and resources that CF Center research teams can take to integrate and maintain patient/caregiver-partners in CF research.
NextBreath is a free, biannual virtual event that provides support and connection for people with CF and their family members who are living with advanced disease or navigating through the stages of the transplant process.
NextBreath is a free, biannual virtual event that provides support and connection for people with CF and their family members who are living with advanced disease or navigating through the stages of the transplant process.
Equilibrar la vida escolar y social con la atención diaria para tu fibrosis quística puede ser algo abrumador, especialmente cuando sumas a la lista cómo manejar la alimentación. Sin embargo, cuando sabes de qué manera los alimentos, enzimas y suplementos pueden ayudarte a sentirte más enérgico y fuerte, equilibrar la vida con FQ puede ser más sencillo.
En la fibrosis quística, hay una estrecha relación entre el peso y la función pulmonar – entre mejor sea su IMC, a menudo, mejor será su función pulmonar.
Las siguientes preguntas y respuestas abordan inquietudes de la comunidad sobre el COVID-19 y la escuela.