By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
The CF Foundation writes to Michigan’s House Committee on Insurance and Financial Services to provide comments on SB 483: The Prescription Drug Cost and Affordability Review Act, which would create a prescription drug affordability board in the state.
CF Foundation letter to Michigan’s Committee on Insurance and Financial Services supporting HB 4719, which would require insurers to apply third party assistance to out-of-pocket maximums and other patient cost-sharing requirements.
CF Foundation letter thanking Michigan’s governor for providing adequate funding for the Children’s Special Health Care Services program and Medicaid in the state’s 2024 budget, both of which play an important role in ensuring consistent access to care for Michiganders living with CF.