Statements, Letters, and Regulatory Comments

Statements, Letters, and Regulatory Comments

By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.

Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
Drug Pricing and Access CF Foundation Supports Tennessee's Efforts to Ban Maximizers and Alternative Funding Programs

In a letter to the Tennessee Senate Committee on Commerce and Labor, the Cystic Fibrosis Foundation expressed support for SB 2008 which would require covered benefits to be considered essential health benefits and limit alternative funding programs in state-regulated plans.
Health Equity | Drug Pricing and Access | Medicaid CF Foundation Supports Tennessee's Efforts to Improve Access to Medicaid and Ban Maximizers and Alternative Funding Programs

In a letter to the Tennessee House Insurance Subcommittee, the Cystic Fibrosis Foundation expressed support for two bills: HB 2557, which would direct the state to apply for a waiver for continuous coverage for children under age 6, and HB 2170, which would require covered benefits to be considered essential health benefits.