Statements, Letters, and Regulatory Comments

Statements, Letters, and Regulatory Comments

By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.

Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
Drug Pricing and Access CF Foundation Supports South Carolina's Efforts to Ban Co-pay Accumulators, Maximizers, and Alternative Funding Programs

In a letter to the Insurance Subcommittee of South Carolina's House Labor, Commerce, and Industry Committee, the Foundation expressed its support for H.3618 which would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements, as well as ban maximizer programs and alternative programs