Statements, Letters, and Regulatory Comments

Statements, Letters, and Regulatory Comments

By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.

Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
Appropriations | Health Equity | State Programs CF Foundation Urges New York to Use Unspent Funds to Continue Funding the Adult CF Assistance Program

In a letter to the President Pro Tempore and Majority Leader, the Cystic Fibrosis Foundation thanked the Senate for their continued support of the Adult CF Assistance Program and urged that they use unspent funds appropriated for people with CF in previous years to extend the program past March 31.
State Programs CF Foundation Letter Supporting Reinstatement of the New York Adult CF Assistance Program

CF Foundation letter to New York’s governor asking that she sign a bill that would reinstate the  Adult CF Assistance Program.