By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
In a letter to Wisconsin’s Assembly Committee on Health, Aging, and Long-Term Care, the Cystic Fibrosis Foundation expressed their support of AB 773 which would ban co-pay accumulators in the state and require covered benefits to be considered essential health benefits.
The CF Foundation expressed support to members of the Wisconsin State Legislature on LRB 1683/1, legislation that would provide a number of measures to protect patients’ access to medication, including requiring insurers to apply third-party assistance to out-of-pocket-maximums and other patient cost-sharing requirements.
CF Foundation letter to the Wisconsin governor thanking him for funding the Wisconsin Chronic Disease Program and Wisconsin Medicaid in the 2023-2025 biennial budget.