The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Dr. Jennifer Taylor-Cousar is passionate about bringing attention to health inequities in cystic fibrosis. By partnering with the CF Foundation, other organizations, and the CF community, she believes we can work together to create equitable health outcomes for everyone with CF.
BLOG
Ever wonder, “Does my donation matter?” Jodi Marquez-Klarenbeek is living proof of the collective power of raising funds. This Giving Tuesday, give to an organization that's changing lives today.
Nov. 23, 2015
|
3 min read
BLOG
In our newest “Living Today” video, Andy Lipman, 42, describes how he's created a positive spin on coping with a life-shortening disease.
Nov. 20, 2015
|
1 min read
BLOG
Meet Hal Leshner, first-time hiker in the CF Foundation's Xtreme Hike, a fundraising event that challenges members of the CF community, and their families and friends, to take on the great outdoors.
Nov. 19, 2015
|
4 min read
BLOG
Accepting that I have depression was difficult. But my care team, family, medication and talk therapy keep me healthy.
Nov. 17, 2015
|
5 min read
BLOG
In their final “Real Talk” video, Emily, Piper and Somer talk about defying expectations, how every person with cystic fibrosis is different and the reality that there is no set reality for this disease.
Nov. 13, 2015
|
1 min read
BLOG
Over the years, I have received some tough questions from children with CF, but one has really stuck with me. And if I were asked it again today, I know exactly what I would say.
Nov. 10, 2015
|
4 min read