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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Katie-K-Pen-Paper

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To Tell or Not to Tell?

After leaving a job where all of my colleagues knew that I have CF, I've chosen to stay guarded in my new work environment and not take the risk of telling anyone about CF, including my superiors.

Katie-K-headshot
Dec. 8, 2015 | 5 min read
Katharine-Scrivener-waterfall

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On Sadness and CF

My emotions are constantly evolving through this journey with cystic fibrosis. And while I might feel like I am filled with sadness at times, my life is still very full.

Katharine Scrivener_cropped
Dec. 7, 2015 | 4 min read
Somer-Love-Family

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An Open Letter to Family and Friends This Flu Season

Getting sick for a person with CF is so much more than a couple days off watching Netflix. It can be really scary. But you can help us stay healthy this cold and flu season. 

Somer-Love-Headshot-Updated
Dec. 3, 2015 | 3 min read
Dora-Nagy-Bachman-Magic-Kingdom-Night-square

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Jake Bachman’s Wish for the Future

Ever wonder, “Does my donation make a difference?” For people with cystic fibrosis like Jake Bachman, your generosity will give him a chance for the future. This Giving Tuesday, give to an organization that's determined to find a cure for all people with cystic fibrosis.

Dora-Nagy-headshot
Dec. 1, 2015 | 2 min read
Suzanne-Michel-Enzymes

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Holiday Meals and Enzymes

Holiday foods may be wonderful to eat, but they also can be very high in fat. Making sure that you take enough enzymes with these special meals could help you avoid unnecessary issues during a time reserved for loved ones.

Suzanne-Michel-Headshot
Nov. 25, 2015 | 4 min read
Dora-Nagy-Paul-Qui-Dish

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From Paul Qui’s Table to Yours: Arroz Caldo Recipe

An award-winning chef shares his recipe for people with cystic fibrosis, just in time for the holidays.

Dora-Nagy-headshot
Nov. 24, 2015 | 5 min read