Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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CF Foundation Volunteer Keeps Brother’s Memory Alive Through Advocacy Efforts

Read how Blake Leyers helps put a face on this disease by sharing her brother's story.

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Aug. 10, 2015 | 3 min read
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How Utah CF Care Center Staff Work Together to Keep Patients Safe

Learn how nurse practitioner and CF care provider Jennifer Hamilton helped lead the implementation and execution of infection prevention and control guidelines at her CF clinic.

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Aug. 7, 2015 | 4 min read
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The Unexpected Road to Unexpected Blessings

The road to rebuilding shattered dreams is not a straight one.

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Aug. 6, 2015 | 2 min read
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May The Funds be With You

This year our CF Foundation employee Great Strides team adopted a “Star Wars” theme and, believe me, we went all out to make the experience extra special and out of this world. See for yourself!

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Aug. 5, 2015 | 2 min read
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New Ideas Energize Scientists at CF Research Conference

The Foundation hosted a small conference that brought together CF scientists, clinical researchers, and biotechnology and pharmaceutical industry representatives. Learn more and watch a short video of attendees sharing their thoughts about the progress we are making in CF research.

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Aug. 4, 2015 | 2 min read
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Starting a New Life Chapter

A few years ago, CF started to take its toll on me. I kept getting sick, going on and off IVs, going in and out of the hospital. But through it all, I found a silver lining.

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Aug. 3, 2015 | 6 min read