Whether focused on physical wellness or connectivity and creativity, there are countless projects led by the community to support and empower people with CF and their loved ones.
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As people with cystic fibrosis live longer, there is a growing demand for physicians who are trained to address the unique medical needs of adults with CF and a need for greater participation from adult care programs in the clinical research enterprise.
Alongside the cystic fibrosis community, we advocate for policies and programs that promote access to highly specialized CF care and that help advance research and drug development.
View the Cystic Fibrosis Foundation's Board of Trustees and Advisors.
We want to hear from you. Learn how you can contact the Cystic Fibrosis Foundation.
These evidence-based guidelines were created by a multidisciplinary committee to help cystic fibrosis specialists and primary care providers who care for people with CFTR-related metabolic disorder and their families. It should supplement the standard care provided in primary care.
Working alongside the CF community, the Foundation has fostered the development of more than a dozen CF treatments — an unprecedented number in a short span of time — and helped add decades of life for people with CF. And while therapies such as Trikafta® have had an incredible impact on the lives of those with CF, there are still many people with this disease who do not benefit from existing treatments. Our goal is to cure cystic fibrosis.
The Grampions program provides connection, support, and volunteer opportunities for adults 50+ who want to make a difference for those living with CF and their families while finding community with others.
People living with cystic fibrosis and their families face complicated issues related to getting the care they need. CF Foundation Compass makes sure that no one has to do it alone.
Revised approach to lung function reporting is shown to be more scientifically accurate and may reduce health disparities.